Desmoids are crappy

So - contrary to what the husband has recommended, I have spent a bit of time researching and reading about Desmoids.

He was right. It's not good for my head!

Needless to say that i have had a pretty crappy weekend. And I still haven't heard from my specialist. And that makes me even more crappier!

I've written out my list of questions to ask her, and it's getting longer the more that I read on the interwebs. I'm guessing it's time to stop!

My dreams have been filled with hair loss and operations - not very restful at all! And I haven't even been given the options of treatment yet.

Another thing that is confusing me (mostly from other blogs) is whether or not this thing IS cancer. SOme are saying yes and others are saying no. The Princess (18 year old daughter) had some words of wisdom for that this morning. "Well, it doesn't matter really does it? You know that it is not going to kill you and so all we can focus on is getting it out of you and treated. It doesn't change anything to put a label on it."

Smart girl.

But in the process of all of this stress, I have spent the majority of the day in bed with a migraine. Yay. And now I have a upset tummy. Double yay. Let me tell you - I am feeling all kinds of special today!!!!

Hugs Meg