Saturday, October 12, 2013

It IS a tumor!!!!!

Ever seen Kindergarten Cop? That little kid that always thinks that things are a tumor? We love that and a huge joke in our house whenever anyone is in pain is that "It's a tumor"!

Well - this time it is!

It is actually a deep musculoaponeurotic fibromatosis. Yeah - I cant pronounce it either! Of course the first thing to do is to Google that sucker - and I think that this is a benign tumor also called a Desmoid tumor, very rare - lucky me! The husband is still debating whether it is a Desmond  and of course until I hear back from the specialist I wont know for sure.

This is what I had thought it was the first time that I heard the specialist mention it. I think God was preparing me for this. It needs to be treated like a cancer because it is invasive and will continue to recur, but not metastasize which means it wont grow into other areas of the body. Yay!

I've spent so many hours on the interwebs looking up research and just over the past day or so have become obsessed with other people's blogs. The husband is concerned that I am getting obsessed with this - and I think that is probably true. But from what I can gather, this will be life changing for me, and us as a family.

And can I just say - I think that it's sucky that the specialist is taking her sweet time to get back to me. We have had the results for over a week now - way too much time for me to sit at the computer and find out all the horrid stuff that I might have to endure. My anxiety is, understandable, high and I think that is what is freaking the hubster out.

So - treatment varies so widely that I just cant get a handle on what we might do. Surgery is still a preferred treatment - but this sucker (Fred) has gotten a hold of two of my hamstrings and so I am not willing to go through with surgery only to have him grow back. SO I am thinking chemo and radiation - but we have to wait on this specialist.

So onto running news... I have kept up the running, but have kept my pace slow - really slow! Yesterday I did 3 miles on the treadmill at a pace between 12 and 12.5 minutes per mile, and that is pretty comfortable. The rest of the week I have kept it even slower at about 13.5 while I am outside. Just enjoying the runs.

This morning the son and I will be running a 5k that his school district is putting on. We ran together on Sunday and did the 5k's so that he would know what to expect. He needs a walk break about every quarter mile, so that makes it a very relaxed run for me. I love that we can do this together. Maybe it will become 'our' thing!


DCSD Fittin' It In 5k
Should be a fun morning running with the son.


Hugs Meg

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